
A new study of the drug sodium oxybate for the special sleep problems of fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) really caught my attention for several reasons:
- The 2 conditions were studied together.
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A new study of the drug sodium oxybate for the special sleep problems of fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) really caught my attention for several reasons:
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Blog Classic: July 27, 2009
How do you dispose of your pain-med bottles? Just a few weeks ago, my husband mentioned that it probably wasn’t a good idea to throw my Vicodin empties in the recycle bin. He’s a smart guy, my husband — a few days ago, I read that local criminals are targeting people who they know take narcotic pain killers. They showed up at one elderly woman’s door, threatened her, and told them to hand over her oxycodone. And who’s to say they won’t be back for more?
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I hate having Fibromyalgia today!! Blessings have come my way because of Fibro. But today my pain level is high and my cognitive function is at zero. I know this is because I cleaned sites in the park today. Half way through my legs were rubber. I could tell I was staggering a bit when I was on my feet. I tried napping once we were done, but my eyes felt as big as dinner plates. Couldn’t sleep, but rested a couple hours with my Lucy. My body was continuously jerking. Not just my legs but my whole body. Maybe the jerks kept me awake.
I am looking forward to seeing my doctor tomorrow about the sensations and pain in my left thigh. I expect she will say it is something I need to get used to. This doctor does not believe in prescribing pain medication so I hope she has suggestions.
Lucy had a shower this afternoon! It’s been 10 days since she was spayed. She looks so fluffy. After 10 days her fur was looking awful and she was beginning to smell like a dog.
We had BBQ’d pork ribs for dinner. They were soooo good. I put them in the crock pot this morning on low then Dwain grilled them with a little BBQ sauce. We also had corn on the cob and a good green salad. mmmmmmmmmmm
Spent this morning watching for the eagles and their three fledglings. We saw only one adult and one fledgling. The young are moving further away from the nest. We may need to stop speaking about the eagles and move on to Dwain giving photography tips to the tourists. Wallowa Lake was beautiful as usual. Many boats, fishing and for pleasure. Canadian geese and Merganser ducks. Swallows and Kill Deer birds were busy looking for breakfast.
We came home for lunch then took a nap. Did laundry and dishes, fixed spaghetti for dinner. Not much happening today. The weather is hot so my body is resisting. My left thigh is intense tonight. I have an appointment with my medical doctor on Monday afternoon. I’ve tried ice and heat. Neither helps.
In October we will be hosting at Manhattan Beach Wayside. Then at Nehalem Bay State Park during November and December. I was worried about Christmas but the host coordinator said they can work around holiday-time.
Pardon my rambling tonight.

It’s common for a doctor to ask where you hurt and how badly you hurt, but as you likely know if you have fibromyalgia or chronic fatigue syndrome, pain is …
It’s been about a month since I’ve posted. Way to long! I’ve missed writing. I’ve had a tough month, Fibromyalgia-wise. Between a Fibromyalgia flare and working at the State Park, I haven’t been able to keep up with my household chores. For those of you who don’t know me or have not read my entire blog, Dwain and I live in a 37′ Montana Fifth Wheel. I should not have trouble keeping up this small space, but I do. Dwain is no help in the housekeeping department. I did grocery shopping a week ago and there are still two bags sitting in the corner of the kitchen. I have only done what must be done. Can’t give anymore.
The burning on my left thigh is worse. It has spread to the inside of my leg and up my hip to my butt. It burns, cramps and feels like something is stabbing me. It also hurts to have pants on. I am convinced it is a Fibromyalgia symptom. I went to the Chiropractor. She believes it might be Reflex Sympathetic Dystrophy (RSD). Apparently my leg would have been injured sometime back. Now the nerves are reacting to the injury in a delayed reaction. Sure could be Fibro related as it involves the nerves. Apparently Chiropractic adjustments will not help. I made an appointment with my medical doctor for Monday.
This week will be a busy camp week. Three of the park hosts will be leaving the end of the week and new hosts arriving. When there is a turn over, it is extra busy for those hosts staying until the new hosts have gone through their orientation and can begin their duties.
Our Josh turned 12 this week. He has a new bike! He has been battling his own health issues, but is feeling much better.
We had Lucy spayed last week. Can’t give her a bath for 10-14 days. Her fur doesn’t look right…she needs a bath, but must wait ’til Sunday at the earliest. Her incision looks good. She has a Kong I fill with treats. She must work to free the treats from inside the Kong. Most dogs lick to release the treats. Lucy works the traditional way periodically. Most of the time she picks up the Kong, puts her head back then drops the Kong. It’s like she is throwing it. Treats fall out often enough for her to continue this practice. She’s smart as well as cute!!!
I hope everyone has been well.
While researchers have yet to pin down the exact causes and mechanisms involved in chronic fatigue syndrome, most of them are now agree that the condition involves significant problems with the immune system, and that immune dysfunction leads to many of the characteristic symptoms.
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Food of the Week: Blueberries
Blueberries are showing up in all kinds of products these days because of research showing how healthy they are. They offer a lot of benefits that those of us with fibromyalgia…

Health care is expensive. It can be hard enough to pay for the multi-pronged care those of us with fibromyalgia and chronic fatigue syndrome typically need even if you’re …

Are you staying cool and hydrated during this hot weather? Those of us with fibromyalgia and chronic fatigue syndrome should take …
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