Temperature sensitivity, changing barometric pressure, low light levels, varying routines … whatever you blame it on, it’s rare to find someone with fibromyalgia and chronic fatigue syndrome who doesn’t see a seasonal flux in symptoms. Sometimes it’s severity that changes, while other times it’s just different symptoms for different seasons.
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Blog Classic: Sept. 27, 2009
My feet are freezing (and hurting!) as I write this, and I can’t get them warm. Why? In part, because they just get that way. Also in part, because I haven’t gotten back into my cold-weather habits yet. The temperature sensitivity that often comes with fibromyalgia…
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Do Epsom-salt baths ease the pains of fibromyalgia and chronic fatigue syndrome? They’re a common home remedy, but do Epsom salts really do anything? And if so, how?
I …
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Research Brief
A drug called droxidopa is now moving into phase II clinical trials as a treatment for chronic fatigue syndrome.
Droxidopa is a synthetic version of a substance your body uses to make the neurotransmitter/hormone norepinephrine. Norepinephrine performs several important functions, and you body also uses it to produce dopamine, another important neurotransmitter. Studies have shown that this drug can improve fatigue, weakness, concentration, and orthostatic hypotension (blood pressure drop upon standing, which causes dizziness) in several conditions, including Parkinson’s disease. These symptoms are also common in chronic fatigue syndrome, and studies show that some people with this condition may have low levels of norepinephrine and dopamine.
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Research Brief
A new study published in the prestigious New England Journal of Medicine provides further evidence that Tai Chi, a form of slow-movement exercise, may be effective for managing fibromyalgia…
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BREAKING NEWS: The much-anticipated FDA/NIH study on XMRV and chronic fatigue syndrome (ME/CFS) is out, and it not only confirms the original findings tying the retrovirus to a large number of cases, it identified a host of infectious agents in the same family, called MLV-related viruses.
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Feeling so much better today.
My back is maintaining. Saw my Chiropractor today.
My depressive mood is gone! I hope it stays away for EVER!!
My biggest worry today is for my sister-in-law, Marcy. She has been taken by ambulance to OHSU in Portland. They know she was dehydrated, severely anemic, had a stroke atleast 48 hours ago (she didn’t know it happened) and, if all that isn’t enough, she has an aneurysm near her brain stem. My brother has taken care of their three small children, leaving them with family and the last I heard he was driving the two hour trip to Portland. He will call me later with an update. I hope she will be ok. I would hate to loose her. Her Mom died of after having a stroke, then an aneurysm so she is understandably scared.
I have wonderful people who read my blog. Thank you for your encouraging words. I know we live this vicious cycle…pain, depression, then doing ok. We know what it takes to exist in our world. It’s a constant battle to balance what we feel and what we portray. Always trying to push ourselves to participate. I think I’m tired of trying. I need a couple of days to do nothing, but take care of myself.
Today is a quiet day in the park. Sunday is a transition with another round of campers. Reservations are slowing down with schools starting. It’s a good time to do the extra projects in the park. Today is a cool day, cloudy. The sun is due back this coming week and Labor Day weekend will be upon us. We also start loosing hosts. They are moving on to their next assignment. That leaves an extra load on us who stay until the new hosts arrive.
Our 38th wedding Anniversary is September 1st. The longer we are married, the more amazed I am of our journey. Dwain and I met the first time as toddlers. Our parents square danced together so we saw each other periodically during our young years. We went to separate grade schools, but the same high school. We started dating the fall of our junior year. We dated three additional years out of high school before marrying. We have three awesome kids, who are leading productive, happy lives. They have terrific mates and our grandchildren are amazing. I count my blessings in the family department daily.
My bulging disks are doing better today. I continue my exercises and will see my Chiropractor on Monday.
NEWSBRIEF: An FDA panel has recommended against approving the drug sodium oxybate as a fibromyalgia treatment, by a vote of 20 to 2. This is not a final decision, …
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I am in a period of coping poorly with my Fibro. I’m not resting as I should, pain has increased. My bulging lumbar disks in my lower back are acting up. A muscle or tendon near my elbow hurts as it does when I park host, from over use. AND my left shoulder is having the same issue as my right elbow. I’m a mess!
Because my physical self is so painful, my emotional self is suffering too. I know the remedy is to rest, but how will household chores get done? Dwain has never been helpful in that department. He did wash his breakfast plate this morning. He has been shampooing the carpet, one room at a time. I do appreciate him taking on that challenge. I just wish I could have the engery level I had prior to my diagnosis of Fibromyalgia and Chronic Fatigue. The sad part is that I never will have that wish. When I get emotional the depression starts to rear it’s ugly head. I must fight to stay above it. Depression is one more thing I gotta do. I don’t have time for it so I must work hard NOT to have it on my “To Do” list. OK, pitty party over!
Lucy has had two days of eating well and not throwing up. She is a happy puppy and I’m so glad we have her. She is a treasure. She is now 5.5 months old.
