Introduction to Lupus disease

Introduction to Lupus disease : Definition, types, and causes

Lupus disease affects approximately 1.5 million Americans and over 5 million patients globally. Although lupus disease is a cause of continuous suffering, the outcome is typically favorable. Lupus communities believe that with the right healthcare aid and a continuous medical treatment plan, 80 to 90 percent of patients with lupus can have a healthy living standard. Yet, the prevalence of the symptoms determines the consequences of lupus. That means some patients who experience significant flare-ups may be at a higher risk of their lupus becoming life-threatening.

This blog post examines whether lupus may cause mortality, how much it impacts specific parts of the body, and what measures a patient can follow to treat their lupus and guarantee a healthy living standard.

What do you need to know about lupus?

Lupus is a chronic autoimmune illness in which the immune system of the patient’s body becomes overactive and mistakenly targets regular, normal tissues.

Lupus disease is sometimes hard to diagnose since its features and effects sometimes match those of other illnesses. There are no two lupus instances that are the same. Features and effects may appear abruptly or gradually, be moderate or intense, and be momentary or chronic.

Lupus disease symptoms sometimes look like other diseases

The evidence and effects of lupus that you encounter will be determined by which organ systems are damaged by the condition. The following are some of the most prevalent indications and clinical signs:

  • Breast discomfort
  • Exhaustion
  • When confronted with harsh weather or under challenging situations, the fingers and toes become pale or purple.
  • Breathing difficulty
  • Sickness
  • Eyes that are dry
  • Sensation, discomfort, and edema in the joints
  • Skin irritation in the shape of a feather that covers the cheekbones and nasal bridge of the patient’s nose, as well as spots everywhere on the body
  • Pain, anxiety, and mental confusion like some symptoms of Alzheimer’s disease.
  • Skin sores that form or intensify as a result of solar radiation

Most common types of lupus

Systemic lupus erythematosus

The most common kind of lupus is SLE. It is a disorder that affects the entire body. This implies that there is an effect on health. The signs might be modest to serious.

It is much more devastating than other kinds of lupus, like eosinophilic lupus, since it can attack any tissue or internal functioning of the body. As a result. this can lead to irritation in the body, bones, organs, tissues, bloodstream, and heart, or a composite of these organs.

This disorder is prone to reoccurring in repeats. The patient would have no sensations during recovery. The condition is triggered during a flare-up, and signs arise.

Discoid lupus erythematosus

Characteristics of discoid lupus erythematosus (DLE) or cutaneous lupus impact just the skin. The cheeks, chin, and neck develop a redness.

Scar tissue may occur if the elevated portions become dense and rough. Moreover, the redness can remain anywhere from a few days to many seasons and might reoccur.

DLE will not impact the vital organs. However, according to the LFA, roughly 10% of patients with DLE will acquire SLE. However, it is unclear if these patients already developed SLE and only had diagnostic symptoms on the face, and whether there is a development from DLE to SLE.

Neonatal lupus

The majority of newborn infants to SLE women are natural. Nonetheless, about 1% of mothers with lupus autoimmunity will deliver a kid with neonatal lupus.

Infants with neonatal lupus can also have skin redness, liver issues, and reduced blood levels when they are born. Hypertension will affect near 10% of them.

Infants can get neonatal lupus from their mothers

Sores normally disappear within several weeks. Some newborns, though, get a congenital cardiac blockage, the one in which the heart is unable to control a regular and regular pulsing movement. The baby may require a defibrillator. This is a potentially fatal situation.

It is critical for ladies with SLE or other immune-mediated illnesses to be under the supervision of a doctor throughout pregnancy.

Drug-induced lupus

Approximately 10% of persons with SLE get signs as a result of a response to specific pharmaceutical medicines. Around 80 medicines have been linked to the syndrome.

Some of them will have medications used to control epilepsy and hypertension. Some hormone drugs, antihistamines, ketoconazole, and oral contraceptives also have effects.

Therefore, drug-induced lupus usually resolves once the patient discontinues the prescription medication.

Major causes of lupus

People who have a hereditary proclivity for lupus may get the illness if they come into touch with anything in the surrounding that might induce lupus. However, throughout most circumstances, the etiology of lupus sources isn’t clear. Among the probable causes are:

Using certain drugs can cause lupus
  • Solar radiation: Sun radiation can cause lupus skin conditions or elicit an organ sensitivity in those who have predisposition to it.
  • Bacteria: Infections can trigger lupus or induce a recurrence in certain persons.
  • Drugs: Specific heart rate drugs, anti-seizure pharmaceuticals, and antimicrobials can all cause lupus. When patients with drug-induced lupus quit taking the medicine, they generally recover well. Furthermore, in rare cases, signs may linger long after the medicine has been discontinued.

5 Best Jobs For People With Fibromyalgia (Recommended By Experts)

It is difficult to ignore the fact that many are struggling to find jobs these days, especially since Covid-19 pandemic struck the whole world.

Obviously, this may be the worst-case scenario for people suffering from chronic pain conditions. Take fibromyalgia as a typical example. You are hurt everywhere because this condition results in chronic widespread pain and a heightened pain response to pressure (according to Wikipedia). Also, symptoms like tiredness, memory troubles, and sleep problems affect normal activities, not to mention depression and anxiety disorder.

How are they supposed to make a living with such a distressing medical condition? Luckily, these 10 suggestions of jobs for people with fibromyalgia can be considered an ideal alternative.

Understanding Fibromyalgia Condition

It may seem rare, but fibromyalgia syndrome is actually among the most common musculoskeletal conditions in the US. People between the age of 25 and 60 tend to be diagnosed with fibromyalgia, of which women are 10 times more susceptible to the condition.

Symptoms

Being a chronic condition, fibromyalgia leads to a number of symptoms: bone and muscle pain, fatigue, and cognitive issues. These signs resemble many other types of medical conditions, therefore, even a doctor can misdiagnose fibromyalgia.

Scientists and healthcare experts have by far not been able to understand all aspects of fibromyalgia. Besides, confirming the diagnosis of a fibro-patient requires serious efforts of testing, which makes it burdensome right from the beginning of the treatment process..

Fibromyalgia can still be challenging to treat. But medications, therapy, and lifestyle changes can help you to manage your symptoms and to improve your quality of life.

Healthline.com mentioned fibromyalgia effects as “regions of pain” where the sensitivity to pressure is heightened, triggering chronic pain and amplifying its severity. Over time, the patient’s brain can misinterpret normal pain signals, leading to overreaction or impacting the quality of life.

Reasons & Causes

Unfortunately, what exactly causes fibromyalgia has not been identified, even by the most prominent researchers. However, there is a consensus among scientists that fibromyalgia may stem from a set of triggering factors. 

Firstly, it is infections that can make people develop fibromyalgia. Some scientific evidence has shown that viruses and bacteria link to illnesses such as flu, pneumonia… can all be potential risks.

Secondly, genes may serve as a factor behind the diagnosis of fibromyalgia. If one member of your family suffers from this condition, be careful and pay attention to relevant symptoms.

Thirdly, traumas including both physical and mental issues, even simple conditions of stress, are somehow associated with fibromyalgia. They are prior to long-lasting detrimental impacts on your body, contributing to hormonal changes.

Treatment

Still, there has not been a 100% effective remedy for fibromyalgia. Yet, healthcare experts recommend that patients focus on the following methods to reduce the effects and improve their overall life quality: medication, self-care routine, and a healthier lifestyle.

Practicing medication is a good way to relieve pain regarding both your mind and body. Normally, a fibromyalgia patient should seek advice and guidance from a therapist, or be involved in some communities and movements.

Changing your self-care patterns and habits can also bring about positive results. Putting effort into physical exercises, reducing stress, increasing sleep quality, and opting for a healthy diet are sure to make you feel better.

What Makes Ideal Jobs For Fibromyalgia Sufferers?

Finding jobs for people with chronic pain is undoubtedly a brain-twister. Apparently, being diagnosed with fibromyalgia requires people to follow strict rules while working on a daily routine. 

Of all factors, a flexible working condition that causes minimal stress is a must. However, chances are you will never find a perfect job with no downsides. 

Hence, a bit of disadvantage can be acceptable if the job guarantees many other positive working conditions to support a fibromyalgia patient’s needs. The below list will introduce a number of aspects to take into account when finding jobs for people with fibromyalgia.

– Working remotely:

This is by far the most ideal type of job for fibromyalgia patients. Getting allowed to work from home is of utmost importance, especially during this pandemic. Besides, it gives many benefits to people diagnosed with fibromyalgia since they can handle things immediately when there’s a need for treatments.

– Permission to set a personal schedule (or flexible hours):

If working remotely is not an option, try looking for places where people can choose a flexible schedule. It helps fibro-patients deal with spontaneous situations, such as taking some time to rest when they feel tired or pain in muscles.

– No fixed postures:

As we mentioned earlier, fibromyalgia causes heightened pain response to pressure. Therefore, never should we force fibromyalgia sufferers to sit or stand for a long period of time. Instead, it is necessary for them to perform a variety of physical movements, including standing up, sitting down, and walking around to take a break.

– Minimal stress:

Frequently working under stress or being exposed to stress-related tasks will give rise to more severe problems. The more they avoid stress at work, the better they maintain their career without worrying about potential risks and daily struggles.

– No physical challenges:

Under some circumstances, fibromyalgia patients are extremely sensitive to physical pressure. Even the smallest touch can cause them widespread pain, so stay away from as much bodily contact as possible. If someone you know suffering from fibromyalgia wants to work as a porter, change their mind immediately.

5 Jobs For Chronic Pain Sufferers That Are Sure to Help

1. Tutoring/Childcare

Working at a school, daycare facilities, or personal care are exactly what ideal jobs for people with fibromyalgia look like. It can become even better if you enjoy caring for children and are willing to help people look after their kids all day long.

If you cannot meet the requirements to apply for a school, look for a babysitter job instead. Many people offer a part-time position for being a nanny, totally suitable for fibromyalgia patients to adapt.

2. Rideshare Driver

We know that we mentioned “no fixed postures” above, but working for rideshare services (like Uber or Lyft) can be an exception. This job doesn’t require you to sit and drive for long periods. Even when a passenger wants to travel a long distance, drivers can always choose not to take the offer. 

But, why not a taxi driver? In fact, rideshare services differ from traditional taxi services in terms of how they implement modern technologies into operation. As a result, rideshare drivers can just stay where they are, updating information on the rideshare app to find passengers. There’s no need for them to wander around and catch the attention of people on the streets.

3. Freelance Writer/Designer/Web Developer

Simple as it may sound, writing can actually turn into lucrative careers for fibromyalgia sufferers. The proliferation of Internet platforms and social media have provided vital support for bloggers, authors, freelance writers…

The best thing is that you can do the job of a freelance writer, designer, or web developer anywhere you like, whether on your bed or at a coffee shop. Also, you can always set a flexible schedule to work so long as you can complete the task before your deadlines. 

Obviously, there are some requirements to meet before you can be qualified for the job. Apart from prior experience or relevant degrees, different skill sets of content development, graphic conception, and information technology is necessary. Otherwise, you’ll have to struggle for a while before achieving an adequate level of income.

4. Pet Caring

These days, people care for their pets just like their children. Some are willing to pay a fortune just for their dog to look nice and happy all the time. Therefore, spending time with pets and knowing how to satisfy their needs can help you earn a lot of money.

Basically, this is similar to childcare jobs, except that you’ll have to deal with animals. However, it is easier for fibromyalgia patients to manage their time and effort, since fulfilling a pet’s wishes is not as hard as children’s. 

5. Remote Customer Service Representative

Of all jobs for people with fibromyalgia, a remote customer service representative ranks among the most fibromyalgia friendly positions. 

Its main responsibility is to connect with customers and clients – mostly through phone or online messages – to have them updated with the latest date or inquire about something. Normally, your company will provide a script guide. All you have to do is make sure to convey the right information, or transfer the call to a supervisor if necessary. 

After all, every single one of us is contributing value to society in some way, no matter what they do (legally) for a living. Hope that our list of Top 5 jobs for people with fibromyalgia can prove to be of help.

Is Fibromyalgia Proved To Be A Real Disease?

Within the last ten years, Fibromyalgia has been the subject of many books and medical reports, and it seems as though everyone knows someone who has it.

“Fibromyalgia” comes from the word “fibrositis”, which is a chronic disease syndrome, marked by debilitating fatigue, widespread muscular pain, and tenderness at specific points on the body. It is called Fibromyalgia Syndrome, or FMS for short. A syndrome is a group of symptoms that, together, are characteristic of a specific disorder or disease. It is a predictable, characteristic, condition or pattern of behavior that tends to occur under certain circumstances.

Sometimes people wonder if they are imagining how bad the symptoms really are, feeling terrible one day and not so bad the next. Therefore you may start to think you might have been exaggerating how bad you felt the day before. You may experience ups and downs of pain and other symptoms that accompany fibromyalgia and begin to worry that perhaps the problem isn’t that big of a deal. You may think, “Maybe if I just ignore the problem it will go away.”

The reality is, YES, FIBROMYALGIA IS REAL!

You should feel great relief that Fibromyalgia is considered a real illness, a medical syndrome that millions live with all over the world. Fibromyalgia is not “in your head”.

No doubt, Fibromyalgia is a chronic medical problem that can be a daunting challenge for anyone who has it. Being a recognized medical problem, it needs to be dealt with.

How Can I Tell That I Have FibroMyalgia?

To know whether you may have Fibromyalgia, consider patterns among people already diagnosed. You can still have Fibromyalgia, however, even if you don’t quite fit nicely into one or more of these categories but its less likely.

There are medical problems often confused with Fibromyalgia such as Chronic Fatigue Syndrome, arthritis, or thyroid disease. Some, of course, have more than one of these medical problems.

Only your doctor can diagnose your condition to be Fibromyalgia but there is a simple self-test you can use to determine if you may have it. A series of questions that require a “Yes” or “No” answer will follow next. If it seems that you may possibly have Fibromyalgia syndrome, make an appointment with your physician and find out for sure.

  • Do you have a lot of pain in certain specific areas of your body? If so, do the areas lack any obvious damage such as bruising or swelling? (These painful areas may be the “tender points” that are characteristic of Fibromyalgia.)
  • Is your body pain sometimes severe? (Another Fibromyalgia indicator.)
  • Do you have trouble sleeping on three or more nights per week? (The problem may or may not be connected with Fibromyalgia but nearly everyone with Fibromyalgia has sleep problems. A continuing loss of sleep may also make your pain and fatigue worse.)
  • Do you feel exhausted about half the time, or more? (Severe fatigue is a problem among nearly everyone who has Fibromyalgia. It is often linked with a lack of sleep and Chronic Fatigue Syndrome shares this symptom. Your physician will be able to help.
  • Do people often ask if you are sick? (You may be displaying pain on your face without even knowing it.)
  • Do you turn down social invitations rather than risk having to go out feeling achy and tired? (Ask yourself, “Why?”. Is it due to pain or fatigue, or could it be depression? Depression is treatable with or without Fibromyalgia.)
  • Do you find yourself wondering whether your aches and pains will ever go away or if you’ll feel like this forever? (Consult your doctor to find out if this is Fibromyalgia or another problem.)
  • Are you always losing things, or forgetting things? Do you have mental confusion that makes you wonder if you could possibly have an early onset of Alzheimer’s disease? (You may have this problem stemming from Fibromyalgia or it could be something else. If you have answered Yes to some of the earlier questions, you could have Fibromyalgia. Do consult your physician.)
  • Are you having trouble finding a pattern to your pain – some days your pain is bad and other days it’s not? (This is a sign of the chronic “ups and downs” of Fibromyalgia.)
  • Are you “down” about the pain and fatigue you are feeling? Do you wonder if depression could be the problem? (It’s possible to have both depression and Fibromyalgia. Keep in mind that, as of this date, laboratory tests cannot diagnose Fibromyalgia but tests can tell you if you have another medical problem.)

Could I Be Suffering From Another Disease?

Yes, there are other medical problems that are confused with Fibromyalgia, such as Chronic Fatigue Syndrome, thyroid disease, myofascial pain syndrome, Lyme disease, or other common (or not so common) illnesses.

Even physicians can get confused when they’re working on a diagnosis. One good reason is that some of the same symptoms can be part of many illnesses. For instance, one of your symptoms may be extreme tiredness, even though you haven’t been doing anything. This is a possible symptom of a thyroid problem, Chronic Fatigue Syndrome, Lyme disease, and Fibromyalgia.

Be aware that trained physicians initially may diagnose Fibromyalgia when, in reality, it is another problem, or the very opposite could happen – sometimes a diagnosis of another medical condition is given when its actually Fibromyalgia that you are suffering from. Even harder to diagnose is the person who has Fibromyalgia but also has one of the other conditions as well.

It is also possible, though far less common, to have a medical problem called Reflex Sympathetic Dystrophy, Multiple Chemical Sensitivities Syndrome, or Mononucleosis.

To be on the safe side, it is good to have a basic understanding of these other diseases that are often confused with Fibromyalgia, and then you will be better prepared when you meet with your doctor.

Since your problem could be a medical condition other than Fibromyalgia, it is always best to see a physician to get the correct diagnosis. Most doctors are becoming more adept at distinguishing between Fibromyalgia and another medical problem.

What Are The Symptoms Of Fibromyalgia?

Most people with fibromyalgia say they have several, if not all, of the following symptoms. They are specific tender points that are painful.

  1. Pain and flu-like overall body aches that change intensity (sometimes severe, other times moderate). One aspect of fibromyalgia is that the worst pain can be in your lower back one day and in your neck the next day, and maybe your upper back the following day. Frequently what happens is you suffer a combination of medical problems. You never know when or where the pain will be next.
  2. Morning muscle stiffness is common for people with fibromyalgia. Many people with fibromyalgia say that severe muscle stiffness and achiness are at their worst in the morning. Movements, when you get up in the morning or after sitting for a long period, look torturous and stiff to onlookers. The stiffness may diminish as you move about but it usually doesn’t go away completely.
  3. Extreme fatigue or constant exhaustion that occurs day after day, even when you haven’t done anything. Few people find themselves able to get a satisfactory night’s sleep. Many people suffer from bone-numbing exhaustion that goes well beyond simple tiredness. Fibromyalgia pain often serves as the cause of insomnia. It becomes a vicious cycle – lack of sleep makes you feel worse.
  4. Frequent or constant trouble sleeping.
  5. Family members diagnosed with fibromyalgia (especially a parent or a sibling).
  6. Recent physical trauma (for example a car crash or a hard fall).
  7. Mental malaise and confusion often referred to as fibro fog. Included also would be difficulty concentrating, forgetfulness, and or attention difficulties.
  8. Other pain-based medical problems are listed below:
  • Irritable bowel syndrome or spastic colon.
  • Interstitial cystitis.
  • Arthritis (osteoarthritis or and rheumatoid).
  • Headaches (migraine or tension) or and Temporomandibular Joint Syndrome.
  • Chronic fatigue syndrome.
  • Restless legs.
  • Chronic heartburn.
  • Paresthesia – pins and needles that primarily affect the legs, hands, or feet.
  • Tinnitus – ringing in the ears.
  • Heightened sensitivity to odors, noises, bright lights, medications, changes in the weather, and or various foods.
  • Abnormal anxiety.

What Causes Fibromyalgia (According To Science)?

While the cause of fibromyalgia remains unknown, there are intriguing theories on why a person may have developed Fibromyalgia, including a car crash or another serious injury, (such as a repetitive strain injury like carpal tunnel syndrome) infections, from a virus, bacteria, or mycoplasma, (which are a group of parasitic microorganisms that in some respects are intermediate between viruses and bacteria), auto-immune systems out of control, a traumatic event, (such as a very difficult pregnancy), any extreme life-threatening illness, hormones, or biochemicals gone awry. Fibromyalgia may have multiple causes.

Some researchers feel that the onset of fibromyalgia can come from previous physical or sexual abuse. Others believe fibromyalgia is caused by a deficit in the neurotransmitter serotonin. Still others feel it is a central-nervous-system dysfunction. Most people say that it was an event or events that triggered the beginning of their illness.

Whether it’s primarily fibromyalgia that comes over time or post-traumatic fibromyalgia from being in an automobile accident, a fall, or some other type of trauma, the link between trauma and fibromyalgia have come to be accepted. No one knows, as of now, how physical trauma or abuse triggers fibromyalgia. It is surmised that it could be that the body’s stress response is shocked. In turn the stress response rushes to help the body resist the trauma by mobilizing hormones and neurochemicals. The body is reacting to this traumatic event and then when the traumatic event is over, the reaction keeps going (which is really called over- reacting).

There are triggers that do not cause fibromyalgia, though they can cause a person’s pain to become greater and also retain pain longer than individuals without the fibromyalgia. These triggers include stress, lack of sleep, depressions, and anxiety.

Meanwhile, whatever the causes, millions of people are suffering from a real syndrome. We look forward to breakthroughs in the near future.